Life with chemo

richaceg

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Feb 11, 2009
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1st time..woke up in morning stretched my neck side to side..and noticed tightness on right side...felt around and notice small lump..size on my pinky nail...since S/O is a nurse ..she che ked and said get to the DR....and rest is history
I also did a barium swallow and it showed a large mass under my breastbone plate..didn't know it was there..A-symptomatic..if I didn't find the little lump the larger mass would kept growing until it was too late
2nd time..lump just above clavical did biopsy and yup back again..
3rd time ..was having coughing fits to point of choking..Did CT SCAN..and several tumors surrounding my esophagus..had to use experiment chemo drug cus on my A-Fib and closeness to heart..so couldn't do just radiation..
As far as foods
Hard liquor out
Beer is beverage of choice now
Spicey foods out
Semi bland in
is it an aggressive type? My Father in law...as soon as detected (no lump / lymphoma) but was told it was an aggressive...he had 5 months from the time it was detected....his body went from 200 lbs. to 90 lbs. in that span too....my SO as tiny as she is took care of her dad in his last 3 months....watching her dad get eaten inside....You guys keep fighting
 

Gators

Well-known member
Apr 9, 2023
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Gators which MD Anderson Clinic did you go to, the one in Ohio or in Dallas? I've never been to Texas always wanted to go there. I had trouble understanding some of what you wrote and didn't want to look like a Friends moron.
In Houston.

he University of Texas MD Anderson Cancer Center (colloquially MD Anderson Cancer Center) is a comprehensive cancer center in Houston, Texas. It is the largest cancer center in the U.S. and one of the original three comprehensive cancer centers in the country.
 

Gators

Well-known member
Apr 9, 2023
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It is very costly to go there. One thing that I noticed in Canada , most of the pathology are wrong at PMH , Odette Centre. You can contact them to get second opinion for around 1200-1500 to make sure proper DX is made. Best wishes. If you are on FB . There are lots of great groups for different type of Cancer.
 

shack

Nitpicker Extraordinaire
Oct 2, 2001
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Everyone can get 2nd opinion from Md Anderson for about 1.2K.
Maybe I've been misinformed, but my understanding is that the records are the property of the patient and if that patient wants to move elsewhere the previous health professional is obligated to forward them to the current one.
 

Gators

Well-known member
Apr 9, 2023
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Slides of pathology belong to the hospital. They always ask for slides to be sent back to the original hospital. Please keep in mind all clinical records and CT and MRI belong to patients
 

Moose134

Active member
Jan 7, 2016
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Thanks for all the well wishes, I'm hoping that I'll be well enough to eat Christmas gnocchi. Funny thing, fresh fruit makes me nauseous but canned fruit doesn't. I don't want to become dependent on the nausea medication, so I eat peaches in syrup when I sense it coming on. I bought individually wrapped mallowpufs for the Halloween collective basket. I won't be taking part.

Look into something called “Rick Simpson Oil”…it helped cure a bunch of ppl who decided not to take chemo. Also, it helped many ppl who decided to take chemo. Helped with mood, appetite, pain. I personally know many ppl (including myself) who got a lot of health benefit from it. Msg me if u want more details.
 

tml

Well-known member
Aug 10, 2011
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Slides of pathology belong to the hospital. They always ask for slides to be sent back to the original hospital. Please keep in mind all clinical records and CT and MRI belong to patients
Hospital laboratories are required by Ontario law to keep the slides for a set period of time(I think it is 2-3 years).
 

Insidious Von

My head is my home
Sep 12, 2007
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Look into something called “Rick Simpson Oil”…it helped cure a bunch of ppl who decided not to take chemo. Also, it helped many ppl who decided to take chemo. Helped with mood, appetite, pain. I personally know many ppl (including myself) who got a lot of health benefit from it. Msg me if u want more details.
I have Rick Simpson Oil already, it's a fine topical that does improve mood and appetite. You place a drop of it under the tongue, you get a gentle buzz. I've also been using Weed Balm Extra Strength, to slow down any potential inflammation of my neck. I also use it on my stomach, to calm my swollen spleen. I don't want to lose my spleen to cancer.

My main goal is to stay out of the hospital and to prevent my blood from going hypoglycemic.

 

poker

Everyone's hero's, tell everyone's lies.
Jun 1, 2006
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Wishing you a speedy recovery my friend…
 

Moose134

Active member
Jan 7, 2016
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I have Rick Simpson Oil already, it's a fine topical that does improve mood and appetite. You place a drop of it under the tongue, you get a gentle buzz. I've also been using Weed Balm Extra Strength, to slow down any potential inflammation of my neck. I also use it on my stomach, to calm my swollen spleen. I don't want to lose my spleen to cancer.

My main goal is to stay out of the hospital and to prevent my blood from going hypoglycemic.

Did you look up the protocol? I can send it to you. It’s something intense like 60 grams in 90 days. But that’s only if you’re not doing chemo. You’ll also be asleep for 90% of that. I know a girl who did that with no chemo & her cancer was legit gone after 90 days. That stuff saved my life. Be well bro.
 

Insidious Von

My head is my home
Sep 12, 2007
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Did you look up the protocol? I can send it to you. It’s something intense like 60 grams in 90 days. But that’s only if you’re not doing chemo. You’ll also be asleep for 90% of that. I know a girl who did that with no chemo & her cancer was legit gone after 90 days. That stuff saved my life. Be well bro.
I read some of the protocol, not all. I use it mainly when my blood sugar is below 5, I can't just eat a chocolate bar to bump it up, it may cause a crash. I'm dealing with insomnia, so I'll be taking it tonight.

Is their anyone hotter than sexy Goth girl Saraya Jade Knight? The great Florence Pugh played her in Fighting with my Family.

 

Insidious Von

My head is my home
Sep 12, 2007
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Joe Rogan has caught the ire of The Rock for suggesting he uses PEDs. Kevin Nash who knows Rocco better than Rogan does, gave his rebuttal. Once I'm finished with chemo, I have to go through six cycles, I'm going on testosterone replacement therapy. I've never felt so weak in my life and I'm genuinely ashamed.

 
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Insidious Von

My head is my home
Sep 12, 2007
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How long does that take?
It's a two day process with each day counting as a cycle. Today was not as gruesome as the first time, I was able to take injections into my stomach without side effects. The work I did on my abs when I was training, are paying for themselves now. I should be done by Christmas now because my abs are still strong. If that were not the case, the oncologist would have to extend treatment at least till Valentine's Day. I've gone from my max weight of 266 lbs to 220.

My personal trainer thought he was humiliating me by making me do exercise usually done by post natal women. What he didn't tell me was that those exercises are even better for men...get woke, don't go broke.

 
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Insidious Von

My head is my home
Sep 12, 2007
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Mind you just working your abs is not enough, they and the lower back muscles support each other. That's why I loved a torture device known as The Roman Chair.

I used it mainly for back extensions. Get woke, don't go broke.

 

rhuarc29

Well-known member
Apr 15, 2009
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Wow...feel sorry for you guys....hope it's worth the bad experience. My father in law passed away stage 4 colon cancer...refused the chemo so...it is what it is. He was 72.
After seeing someone close go through the most rigorous regimen of chemo there is for 5 months, then a lesser chemo for an additional 7 months, combined with radiation and hormone therapy, and seeing what kind of devastation it worked on her, both in short-term and long-term side effects, I'd have to say that I too would refuse the chemotherapy at age 72. Heck, I'm not sure I'd do it at half that age either! But I don't have a wife and kids to look out for, so maybe that influences my decision.

There's a reason a cure for cancer is the holy grail of medicine. The current treatments are horrific to go through, and horrific to see someone you love go through.
 

Insidious Von

My head is my home
Sep 12, 2007
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There's a reason a cure for cancer is the holy grail of medicine. The current treatments are horrific to go through, and horrific to see someone you love go through
The problem with cancer, it's not a uniform disease. My younger brother died quick, he got sarcoma in his shoulder joint, very rare and lethal. So far my oncologist is attempting to keep my neck from swelling up - don't want to end up like an episode from M.A.S.H where Hawkeye cuts an incision into a patients planger (the depression within the wishbone) and install a straw so he could breathe. I told her I would have stunk her office up with verdura, I've been using Weed Balm Extra Strength to keep the swelling down. She hasn't told me I have Burkitt Lymphoma which is the most aggressive type. She would have told me to get my affairs in order.

Note: if you buy this product for pain relief do not throw away the second lid. It keeps the topical from going stale.

releaf balm.jpg
 
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Insidious Von

My head is my home
Sep 12, 2007
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Merry Christmas...may the good Lord take a likin to ya and blow you up real soon. (SCTV)

So I stopped by the convenience store to buy the Bai antioxidant drink. X Mas dinner is at 2:00, I don't want my food to eventually taste like chemo. What a concept, a product that actually does what it claims.

So far I've only foud these at Circle K, no where else.

bai.jpg
 
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Darts

Well-known member
Jan 15, 2017
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Hey Von, all the best to you and yours. Happy 2024!

You're one of the good guys.
 
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