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Life with chemo

Insidious Von

My head is my home
Sep 12, 2007
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I received very encouraging news, good thing I took Gators advice to drink water and rest.

Home Care has sent a nurse to drain the fluid from my lungs every two days. Today was the first drainage and 320 ml was extracted, that's significantly better the 1+ cl they were removing at the hospital.

 

shakenbake

Senior Turgid Member
Nov 13, 2003
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Durham Region, Den of Iniquity
www.vafanculo.it
I received very encouraging news, good thing I took Gators advice to drink water and rest.

Home Care has sent a nurse to drain the fluid from my lungs every two days. Today was the first drainage and 320 ml was extracted, that's significantly better the 1+ cl they were removing at the hospital.

Keep fighting, Von!
 

richaceg

Well-known member
Feb 11, 2009
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Von, be honest, do you think you can still go out and hobby? is hiring a nurse that's easy on the eyes out of the question?
 
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Insidious Von

My head is my home
Sep 12, 2007
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is hiring a nurse that's easy on the eyes out of the question?
Hobbying is an uncertainty at the moment, Ill know more how my prospects lie after I see the urologist. I know I'm going to get the surly finger as part of the treatment...chemo enlarged my prostate.

There are some lovely nurses especially the one that cleared my catheter blockage. That was gruesome, worst 20 minutes of pain I've ever experienced. I over-ruled the presiding doctor who wanted me to wear a catheter at home, my bladder was not the problem (see above sentence). As for getting a comely nurse for home care, I couldn't care less. I'll take competence over beauty. Btw home nursing ran me $3275.00 for the weekend, not covered by OHIP.

 
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Insidious Von

My head is my home
Sep 12, 2007
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My sister may have finally put the nail in the coffin of pneumonia, he brought over a tub of Italian chicken soup (pasta e fagioli). What am I saying pasta e fagioli is the cure to what ails you.

It's best with macaroni, Stanley Tucci is a cancer survivor...he left out the pancetta.

 
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NotADcotor

His most imperial galactic atheistic majesty.
Mar 8, 2017
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I know I'm going to get the surly finger as part of the treatment...chemo enlarged my prostate.
]
Keep in mind, if the doctor has both his hands on your shoulder during a prostate exam... it's not a prostate exam.
 
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Westender

Active member
Aug 18, 2001
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Just completed my delayed chemo. How I wish I could hobby again.

The oncologist wanted me to endure it on Dec 20, I requested the New Year, didn't want to be sick for Christmas. I'm not out of the forest yet, have to take a weeks worth of injections to boost my immune system....good things I still wear a mask.

My problem is I hardly ever get nauseous but I have to stay hydrated. Chemo attacks me in a more vicious manner.

I had the same thing, destroyed my body temp. controller... i run hot, need to drink a LOT, but if this is the price for being alive, and slight balance problems.....

I am still on the top of the grass and Kicking Ass.....


All the best... it isn't a race but a journey... 5 years late i get injections to build my red cell count...

Thank god for Benefit plans... $825+ every two weeks
 

Insidious Von

My head is my home
Sep 12, 2007
38,394
6,583
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I had the same thing, destroyed my body temp. controller... i run hot, need to drink a LOT, but if this is the price for being alive, and slight balance problems.....I am still on the top of the grass and Kicking Ass.....
All the best... it isn't a race but a journey... 5 years late i get injections to build my red cell count...Thank god for Benefit plans... $825+ every two weeks
Kicking Ass was a Sioux leader at Little Big Horn. ;)

A week's worth of injections restored my white blood cells, hemoglobin was not so easy. I had to endure 12 hrs of transfusions. Like you I also sweat uncontrollably which I can live with, it's unforeseen nastiness like pneumonia that I have a problem with. Benefits plans?...do you live in the States or are you still of working age. Myself I'm drawing from the pension I built during my working years, the Feds told I didin't qualify for Old Age Benefits. I'm 65 now, that must have changed.
 

NotADcotor

His most imperial galactic atheistic majesty.
Mar 8, 2017
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Alexis*

Alina @Discreet Dolls
Jan 24, 2019
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Toronto
So sorry to hear you're going through this. You may want to try the BRAT diet if you're having problems with food. Bananas, rice, applesauce and toast. It's bland and easy to digest. Cooking fruit and veg cuts down on stomach pain as does drinking nectars instead of juice.
 

Insidious Von

My head is my home
Sep 12, 2007
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I start a new program on Easter Monday with a drug called Zanubrutinib, it's a new drug developed specifically for blood cancers. Anyone have any experience with it?

I over-estimated the bill for 24 hr nursing, it came out to $2300.00...I hope it's tax deductible. They sent me the receipt.
 

Goodoer

Well-known member
Feb 20, 2004
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GTA & Thereabouts...
I start a new program on Easter Monday with a drug called Zanubrutinib, it's a new drug developed specifically for blood cancers. Anyone have any experience with it?

I over-estimated the bill for 24 hr nursing, it came out to $2300.00...I hope it's tax deductible. They sent me the receipt.
Nursing isn’t covered by OHIP?!
 

Gators

Active member
Apr 9, 2023
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I start a new program on Easter Monday with a drug called Zanubrutinib, it's a new drug developed specifically for blood cancers. Anyone have any experience with it?

I over-estimated the bill for 24 hr nursing, it came out to $2300.00...I hope it's tax deductible. They sent me the receipt.
It is tax deductible.
 

Gators

Active member
Apr 9, 2023
271
225
43
I start a new program on Easter Monday with a drug called Zanubrutinib, it's a new drug developed specifically for blood cancers. Anyone have any experience with it?

I over-estimated the bill for 24 hr nursing, it came out to $2300.00...I hope it's tax deductible. They sent me the receipt.
As I mentioned to you I am in group with WM on FB. There are many people who are on it. Most are very happy. Make sure you have shingle shot and have a course of Bactrium. Regarding Bactrium please talk to your doctor.
 

Insidious Von

My head is my home
Sep 12, 2007
38,394
6,583
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Nursing isn’t covered by OHIP?!
Your Provincial tax rate would go up by an extra 8% if 24 hr nursing were covered. We'd have a shortage in no time as rich folks would use the OHIP break to scoop up the nurses to look after their hangnails. It's not a perfect system but it helped me get through my invalid phase.
 
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