My first day home was eventful, Home Care sent a man to bathe me. Didn't give a shit, he wasn't going to jingle my change anyway. I'm not George Costanza.
Life with chemo
- Thread starter Insidious Von
- Start date
I received very encouraging news, good thing I took Gators advice to drink water and rest.
Home Care has sent a nurse to drain the fluid from my lungs every two days. Today was the first drainage and 320 ml was extracted, that's significantly better the 1+ cl they were removing at the hospital.
Home Care has sent a nurse to drain the fluid from my lungs every two days. Today was the first drainage and 320 ml was extracted, that's significantly better the 1+ cl they were removing at the hospital.
Von, be honest, do you think you can still go out and hobby? is hiring a nurse that's easy on the eyes out of the question?
Hobbying is an uncertainty at the moment, Ill know more how my prospects lie after I see the urologist. I know I'm going to get the surly finger as part of the treatment...chemo enlarged my prostate.
There are some lovely nurses especially the one that cleared my catheter blockage. That was gruesome, worst 20 minutes of pain I've ever experienced. I over-ruled the presiding doctor who wanted me to wear a catheter at home, my bladder was not the problem (see above sentence). As for getting a comely nurse for home care, I couldn't care less. I'll take competence over beauty. Btw home nursing ran me $3275.00 for the weekend, not covered by OHIP.
My sister may have finally put the nail in the coffin of pneumonia, he brought over a tub of Italian chicken soup (pasta e fagioli). What am I saying pasta e fagioli is the cure to what ails you.
It's best with macaroni, Stanley Tucci is a cancer survivor...he left out the pancetta.
It's best with macaroni, Stanley Tucci is a cancer survivor...he left out the pancetta.
Last edited:
Keep in mind, if the doctor has both his hands on your shoulder during a prostate exam... it's not a prostate exam.
I had the same thing, destroyed my body temp. controller... i run hot, need to drink a LOT, but if this is the price for being alive, and slight balance problems.....
I am still on the top of the grass and Kicking Ass.....
All the best... it isn't a race but a journey... 5 years late i get injections to build my red cell count...
Thank god for Benefit plans... $825+ every two weeks
Kicking Ass was a Sioux leader at Little Big Horn.
A week's worth of injections restored my white blood cells, hemoglobin was not so easy. I had to endure 12 hrs of transfusions. Like you I also sweat uncontrollably which I can live with, it's unforeseen nastiness like pneumonia that I have a problem with. Benefits plans?...do you live in the States or are you still of working age. Myself I'm drawing from the pension I built during my working years, the Feds told I didin't qualify for Old Age Benefits. I'm 65 now, that must have changed.
Is this a K Roc fantasy or a personal one? A nod's as good as a wink to a blind bat.
So sorry to hear you're going through this. You may want to try the BRAT diet if you're having problems with food. Bananas, rice, applesauce and toast. It's bland and easy to digest. Cooking fruit and veg cuts down on stomach pain as does drinking nectars instead of juice.
I start a new program on Easter Monday with a drug called Zanubrutinib, it's a new drug developed specifically for blood cancers. Anyone have any experience with it?
I over-estimated the bill for 24 hr nursing, it came out to $2300.00...I hope it's tax deductible. They sent me the receipt.
I over-estimated the bill for 24 hr nursing, it came out to $2300.00...I hope it's tax deductible. They sent me the receipt.
As I mentioned to you I am in group with WM on FB. There are many people who are on it. Most are very happy. Make sure you have shingle shot and have a course of Bactrium. Regarding Bactrium please talk to your doctor.
Your Provincial tax rate would go up by an extra 8% if 24 hr nursing were covered. We'd have a shortage in no time as rich folks would use the OHIP break to scoop up the nurses to look after their hangnails. It's not a perfect system but it helped me get through my invalid phase.
this will be a bitter pill for right wingers to swallow.
When i had to take a second ambulance trip to hospital, I was pissed. So I asked the paramedics to take me to Etobicoke General instead of Cortellucci Vaughan Hospital. They misdiagnosed my condition and I started drowning from within. Had I not spoken up I'd be pushing up the daisies now. When i first went to Cortallucci, they diagnosed me hemoglobin deficiency, they gave me four blood transfusions. More than likely, I didn't need so many. Then started having shortness of breath within days of getting home, I was driven to Etobicoke General where I was diagnosed with pulmonary edema. I spent the next 20 days in hospital while they stabilized my condition, then they injected a catheter into my lungs. After I went home again, a nurse would show up every second day to replace the drainage bag.
I had an appointment with the Oncologist two weeks after I was discharged from hospital. She put me on a new drug called Brukinsa - Zanubrutinib, at first it made me very listless for a month then i started getting my energy back. My lung catheter was removed the week prior to the Victoria Day long weekend.
When i had to take a second ambulance trip to hospital, I was pissed. So I asked the paramedics to take me to Etobicoke General instead of Cortellucci Vaughan Hospital. They misdiagnosed my condition and I started drowning from within. Had I not spoken up I'd be pushing up the daisies now. When i first went to Cortallucci, they diagnosed me hemoglobin deficiency, they gave me four blood transfusions. More than likely, I didn't need so many. Then started having shortness of breath within days of getting home, I was driven to Etobicoke General where I was diagnosed with pulmonary edema. I spent the next 20 days in hospital while they stabilized my condition, then they injected a catheter into my lungs. After I went home again, a nurse would show up every second day to replace the drainage bag.
I had an appointment with the Oncologist two weeks after I was discharged from hospital. She put me on a new drug called Brukinsa - Zanubrutinib, at first it made me very listless for a month then i started getting my energy back. My lung catheter was removed the week prior to the Victoria Day long weekend.
You threw me for a loop, I didn't know you meant Waldenstrom's Macroglobulinemia, still don't know what FB stands for. When I touch base with the Oncologist in July, she has to specify what type of Non-Hodgkins Lymphoma I have.
Tony Iommi has NHL, he's lived with it for twelve years.
