lol, funny stuff.(And this can be used to your advantage, spill, drop things on those you don't like, smack 'em and say whoops!)
going public on terb
- Thread starter amber-jade
- Start date
and get away with itAmber, I hope the board can supply you with a fraction of the humor you have provided me with reading your postings.
I wish you the very best.
(And this can be used to your advantage, spill, drop things on those you don't like, smack 'em and say whoops!
Dear Amber,
You have always caught my interest on these forums due to your stand up character, interesting, humorous posts and the respect you have shared and garnered from other members. I really admire your strength and courage in dealing with this disease and your situation. I have nothing but the utmost respect for you and wish you nothing but the best in all that you do. I wish you a most comfortable and fun filled life as I am sure the many who love you wish the same.
Keep smiling AJ.
I have never met you but hope we do cross paths soon.
And if you need anything feel free to pm me.
You have always caught my interest on these forums due to your stand up character, interesting, humorous posts and the respect you have shared and garnered from other members. I really admire your strength and courage in dealing with this disease and your situation. I have nothing but the utmost respect for you and wish you nothing but the best in all that you do. I wish you a most comfortable and fun filled life as I am sure the many who love you wish the same.
Keep smiling AJ.
I have never met you but hope we do cross paths soon.
And if you need anything feel free to pm me.
I've always enjoyed your posts on terb, but never had the opportunity to meet you.
Live, laugh, and love.
Do not go gentle into that good night.
Live, laugh, and love.
Do not go gentle into that good night.
Amber I wanted to thank you for sharing this with us, I believe it will help to raise awareness of the disease and perhaps teach a little tolerance as well. Often people make assumptions based on what they see and don't think to ask questions as to what might really be going on, I can only imagine the difficulties both you and Justin have faced since diagnosis. You have always demonstrated a wonderful approach to life and it's good to see your sense of humor is still intact. My heart goes out to you both, I am glad that you have someone you love around to provide support through this.
http://www.mayoclinic.com/health/huntingtons-disease/ds00401
http://www.mayoclinic.com/health/huntingtons-disease/ds00401
Wow
Life sucks sometimes. I look after a woman who was stricken with progressive multiple sclerosis,she cant walk any more and has many serious problems dealing with life on a day to day basis. At the begining her attitude was fabulous but as the disease progressed and the symptoms got worse and more pronounced her attitude became worse and she has gone from a lovely lady to a miseralbe person. I will always be by her side no matter what and who am I to tell her she is wrong for being that way. I am sure some of your days are filled with anger as well. All I can say is remember the good times and rember that the people that support yopu love you very much God Bless
Life sucks sometimes. I look after a woman who was stricken with progressive multiple sclerosis,she cant walk any more and has many serious problems dealing with life on a day to day basis. At the begining her attitude was fabulous but as the disease progressed and the symptoms got worse and more pronounced her attitude became worse and she has gone from a lovely lady to a miseralbe person. I will always be by her side no matter what and who am I to tell her she is wrong for being that way. I am sure some of your days are filled with anger as well. All I can say is remember the good times and rember that the people that support yopu love you very much God Bless
K...so the rest of you can laugh at me if you want for being sappy, I don't care, but when I am feeling down on myself my wife sings me this song
Amber, in a addition to what I already posted, I certainly hope that you continue to be part of our disfunctional little community here on TERB!
i was just wondering what your initial symthoms were and how did you first realize somrthing was wrong?
Both Amber and Justin are among the coolest people I've ever met.
Amber, I'm sad to hear that your Huntingtons has progressed so far. Try to keep that bubbly personality and wicked sense of humour working for you.
My thoughts are with you.
Amber, I'm sad to hear that your Huntingtons has progressed so far. Try to keep that bubbly personality and wicked sense of humour working for you.
My thoughts are with you.
I don't know Ambers symptoms, although she mentioned some earlier in the thread.
As for realizing if something is wrong, I don't know Amber's story, but I do know that often a diagnosis of Huntington's comes long before the first symptom ever shows itself. Because it is genetic, if one of your immediate family members (parents/grandparents/uncles, etc) has Huntington's, they will monitor all immediate family members, and sometimes do genetic testing.
That was how my friend got his diagnosis, he doesn't even have any symptoms yet, but has Huntington's disease. His father had it and so all the children were tested. It may be years after a diagnosis before a person shows any sign of Huntington's.
Huntington's is an autosomal dominant gene, meaning in most situations, a child has a 50% chance of having Huntington's if one parent has it.
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We are probably saying the same thing, but to the best of my knowledge it is entirely a inherited disease rather than in some cases caused by spontaneous mutation.
Amber, we have never met, but i want you to know my thoughts are with you.
i'm saddened to remove you from my TDL but i wish for your remaining time to be filled with the best
most wonderous orgasms you have ever had.
but seriously, i'm saddened with your news and wish only the best for you.
*hugs*
i'm saddened to remove you from my TDL
but i wish for your remaining time to be filled with the bestmost wonderous orgasms you have ever had.
but seriously, i'm saddened with your news and wish only the best for you.
*hugs*
i was diagnosed with the gene when i was abut 20 years old.
( that was when they where first able to test for it.i knew this was coming since then,
my grandfather & father had the gene, and 50/50 chance i would get it too.LUCKY ME i guess lol
i had just hoped for a cure before now...
on a rating scale from -0- to -5- (-0- having no symptoms) i am on averge a -3- now, some good days some not so....
..
some early symptoms might look like the person is drunk, or stoned on something like rock...slurred speach, involuntary movements ( chorea ) lack of balance...etc
thank you for that papa...xoxo
i plan to hang around terb for a long time..
.
my brain won't allow me to multi quote today i keep clicking way off base...but
i wanted to thank everyone for all your comments..they mean a lot to me..
i wanted to share this a while ago, maybe i woudln't have got some comment like i looked stoned lol
THANK YOU
