Biopsy Results are in. :(

[Phil C. McNasty]

I was honestly just trying to help

 

[Madeline Rhodes]

Nice potty mouth, chickie.

First you say "inclusion of any supplements which might in turn actually boost the immune system would likely speed the process of his disease".....and then you recommend she should look into fish oil.

LMAO

So an acronym is a potty mouth. Good times. I could spell it out for you dear.

Fish Oil aka Fish Body Oil NOT Cod Liver Oil (which is more for Vitamin A)... Is a source of eicosapentaenoic acid (EPA) which has the ability to lower inflammation. It also contains docosahexaenoic acid (DHA) which lowers inflammatory cytokines, which are associated with neurodegenerative and autoimmune diseases.

But what do I know? I wasn't suggesting something to boost his immune system. I was saying to look into it as the Mayo Clinic has done two studies on it because it lowers inflammation, and cytokines.

Gosh I adore the all knowing out there.

Have a nice day,
Maddie

P.S. If you want to continue the medical sciences debate we can go to a new thread. Otherwise... Have a lovely day and get yourself a BJ or something.

 

[LadyTY2Uall]

Thank you all so very much for the support and the advice. I have learned that the most wonderful people can be found in some of the 'oddest' places I do take all the comments and advice seriously and with every new suggestion I learn more. Thank you for that.
I have been doing my research and am learning just how serious his condition is. It is becoming obvious that a transplant is in his future at some point and my Daughters and myself are arranging to be tested for compatibility. What I want to know however is this,,,,,,if his immune system is attacking his kidneys, will the same problem not continue even after a transplant? My head is swimming at the moment and perhaps I am afraid to research this possibility but so far I have not seen anywhere that deals with this question.

 

[mexican]

You may want to investigate the Cleveland Clinic online second opinion service. If there is pathology involved the cost is approx $750 - myclevelandclinic.org. The Cleveland Clinic is ranked #3 (out of several thousand hospitals) in the US for kidney disorders. The second opinion may help determine if the diagnosis is correct and what treatment options there are.

 

[LadyTY2Uall]

Thank you mexican, I believe that is where the biopsy samples were sent. The results just came back yesterday. I think between the Nephrologist in University Hospital plus the lab results from cleveland confirms the diagnosis.

 

[Mervyn]

When you get an organ transplant, you are given drugs to suppress the immune system in order to prevent rejection, those same drugs may help with the condition.

With that I'm sure your son will be asked to change aspects of his lifestyle, which will also help.

Make sure you are writing down all these questions too , next time you speak to a doctor, bring out the list and ask every single one of them, as well as any follow up questions.

 

[UncleBig]

Have you tried to put your son on a gluten-free diet? It causes not only the celiac disease, which is well known, but also many autoimmune conditions. Mainstream doctors know nothing about it. I think it's worth a try.

 

[Never Compromised]

My father had Nephrotic syndrome and survived long enough to die of lung cancer. Good luck with it all.

 

[Rockslinger]

He will need dialysis and/or a transplant at some point in the future.

Apologies if someone has already mentioned this. Ask the doctors if it is better to start dialysis earlier rather than later to relieve some of the burden on his weaken kidneys and perhaps prolong their working lives.

Stay strong and good luck.

 

[Insidious Von]

LadyTY2Uall you have my unwavering support and best wishes; I've been through enough of this myself. There was a time when I feared the worst for someone very close to me, not only did she fight through it she now has a family of her own. Keep his spirits up there will be a rainbow on the horizon for him.

 

[mpdvg]

I was honestly just trying to help

Get an MD. Then try to help. This ridiculous distrust of our incredible doctors amongst some is so unsettling.

 

[LadyTY2Uall]

Thank you again for your kind words and support. At times I come here just to read these comments and take strength from knowing people I have not even met care enough to write words of encouragement. I am truly grateful.

Now, apparently this shot he has to give himself (in the stomach) once a week is helping tremendously. He announced this morning that he has his energy back and is feeling a lot more positive about his future. He has also recognized the wisdom in letting us start the testing now for compatibility rather than waiting till the last minute. To my way of thinking, and no I am not a Dr., it makes sense to get a healthy kidney in him well before he is so sick he does not have the strength to recover....I could be wrong of course but it seems logical to me. All the steroids can do is prevent more damage being done to his kidneys, it will not repair them in any way. And, even though he will still have the disease, the new kidney will be protected by meds, right?

 

[Mervyn]

You would have to ask a doctor that , I'm sure it will be a combination of meds and lifestyle changes that will keep him healthy. And good for you for getting the compatability tests out of the way , that is a good idea.

 

[The Oracle]

Make sure you are writing down all these questions too , next time you speak to a doctor, bring out the list and ask every single one of them, as well as any follow up questions.

This is great advice.

Get an actual notebook and start recording all of questions and the answers you receive on every subsequent visit. And anything else that relates to his condition.

You are in for the long haul here and will be surprised at how much information you will acquire over time.

This gathering of information will assist you in helping him with his recovery.

God Bless, O

 

[Phil C. McNasty]

Get an MD. Then try to help. This ridiculous distrust of our incredible doctors amongst some is so unsettling

Who needs a doctor when we have Madeline Rhodes in the house with her magical fish-oil cures

 

[Madeline Rhodes]

Have you tried looking into natural cures?? If he's missing a hormone all he has to do is take either adrenal or orchic glandulars (or both).
They're available for cheap at a store called "supplements plus" on bloor st. Genestra makes both:

http://www.rockwellnutrition.com/tma-prostate-complex-by-genestra.html

http://www.rockwellnutrition.com/tads-adrenal-extract-by-genestra.html

Doctors are basically errand boys run by the pharmaceutical companies, all they wanna do is sell you expensive patented drugs when much cheaper natural remedies are available

You mad???

Sorry, but I forgot to say if his disease is testosterone related he can take adrenal or orchich glandulars. I wasnt thinking about the kidney, in that case maybe you should look into kidney glandulars: http://www.amazon.com/Renaplex-Glandular-Kordial-Nutrients-Capsules/dp/B000JM3OAW

Just so you know, glandulars are sold as drugs in Germany by some pharmacies. They are regulated by "Kommission E".
Plus they are cheap, so what do you have to lose??

Who needs a doctor when we have Madeline Rhodes in the house with her magical fish-oil cures

Hey Phil... Please. Keep going dear. I won't be replying after this but I assure you. We all got the hint that you were pushing your "glandulars" but because I posted something from PubMed, and asked because the Mayo Clinic has done more then one study on it... I'm pushing it. Right. It must be bunk because the MD's actually sometimes do it!

------------------------------------------

LadyTy:

http://www.mayoclinic.com/health/iga-nephropathy/DS00856

Definition
By Mayo Clinic staff

IgA nephropathy (nuh-FROP-uh-the) is a common kidney disease that occurs when an antibody called immunoglobulin A (IgA) lodges in your kidneys. This hampers your kidneys' ability to filter waste, excess water and electrolytes from your blood. Over time, IgA nephropathy — also called Berger's disease — can lead to blood and protein in your urine, high blood pressure, and swollen hands and feet.

IgA nephropathy usually progresses slowly over many years, and although some people eventually achieve complete remission, others develop end-stage kidney failure. No cure exists for IgA nephropathy, but certain medications can slow its course.

Keeping your blood pressure under control and reducing your cholesterol levels also may help keep IgA nephropathy in check.

http://www.mayoclinic.org/iga-nephropathy/?mc_id=comlinkpilot&placement=bottom

Overview

A leader in the diagnosis and treatment of IgA nephropathy, Mayo Clinic sees more than 500 patients with this condition each year. Specialists from nephrology, hypertension and pathology work as a team in the diagnosis and treatment of patients with IgA nephropathy

For example, in Rochester, patients are treated at the Mayo Clinic Glomerular/Renal Parenchymal Disease Clinic, a dedicated group of glomerular disease specialists who use state-of-the-art techniques, some developed at Mayo, for integrated diagnosis and treatment. In addition, Mayo physicians work closely with local physicians to coordinate treatment and follow up care.

Ongoing research efforts enhance the care provided to patients with IgA nephropathy. Mayo physician specialists and scientists collaborate in the development and conduct of clinical trials for novel therapies for IgA nephropathy through the Mayo Nephrology Collaborative Group .
Treatment Options

Treatment for IgA nephropathy is directed at slowing disease progression and managing symptoms such as high blood pressure, protein in the urine (proteinuria) and swelling (edema) in the hands and feet. The ultimate goal is to avoid disease progression and the need for dialysis or kidney transplantation. Read more about IgA nephropathy treatment options.

About IgA Nephropathy

IgA nephropathy is a chronic kidney disorder caused by abnormal deposits of the protein immunoglobulin A (IgA) inside the small filtering units (glomeruli) of the kidney. These protein deposits impair the function of the glomeruli, which normally filter wastes and excess water from the blood and send them to the bladder as urine. The IgA protein prevents this filtering process and leads to inflammation, glomerular destruction and kidney failure. Symptoms of IgA nephropathy include the presence of blood and protein in the urine and swelling in the hands and feet.

IgA nephropathy affects patients of all ages, both male and female. The disease is also known as Berger's disease, Primary IgA nephropathy and IgA glomerulonephritis.

http://www.mayoclinic.org/iga-nephropathy/treatment.html

Treatment

Treatment for IgA nephropathy is directed at slowing disease progression and managing symptoms such as high blood pressure, protein in the urine (proteinuria) and swelling (edema) in the hands and feet.

Traditional treatments used to treat IgA nephropathy include:

* Angiotensin-converting enzyme inhibitors (ACE) inhibitors – these medications are used to slow disease progression by limiting protein leakage from the kidney. ACE inhibitors also assist in hypertension management.
* Angiotensin II receptor blocker drugs (A2 ARB) – these medications also limit protein leakage from the kidney and slow disease progression.
* Fish oil – provides beneficial effects to the immune system.
* Steroids and other immunosuppressant medications – modify the immune system response to IgA nephropathy.

Additional novel therapies being tested in clinical trials through the Mayo Nephrology Collaborative Group are available for eligible patients.

For those patients who progress to renal failure, treatment may include:

* Dialysis — Mayo Clinic offers state-of-art dialysis treatment, including the option for in-home dialysis.
* Kidney transplantation — the Mayo Clinic Kidney Transplant Program offers pre-transplant consultation, living donor evaluation, kidney transplantation and post-transplantation care.

It looks like it could be possible depending on the level of damage to avoid transplant. Truly that is your son and his Doctors choice based on the level of damage but wasn't sure if you'd seen this yet.

 

[Phil C. McNasty]

Hey Phil... Please. Keep going dear

Thanx, I will

Whadda you know, kidney glandulars are regularly prescribed by naturopathic doctors for nephrotic syndrome:

http://organicpharmacy.org/products/Renaplex.-.Kidney.Glandular

You see, I was right all along. An apology would be nice

The kidneys perform basically two major functions; they excrete body wastes and control the concentrations of the constituents of body fluids. In many different illnesses, these functions are impeded, resulting in disease of the kidney itself. These include (1) acute renal shutdown (2) chronic renal insufficiency, (3) nephrotic syndrome and (4) specific tubular abnormalities. The importance of supporting the kidneys in any disease state cannot be overemphasized since progressive decrease in the numbers of functioning nephrons can lead to electrolyte overload, hypertension, anemia, osteomalacia, and finally death

 

[mpdvg]

Thanx, I will

Whadda you know, kidney glandulars are regularly prescribed by naturopathic doctors for nephrotic syndrome:

http://organicpharmacy.org/products/Renaplex.-.Kidney.Glandular

You see, I was right all along. An apology would be nice

You've just cited an organic pharmacy website that is making money off of these "medications" that real doctors don't use. Madeline Rhodes cited PubMed. No, you don't deserve an apology.
Her son is being treated by nephrologists - medical doctors with specialty training in internal medicine and further subspecialty training in nephrology (kidney medicine). I don't know what a naturopaths qualifications are, nor do I care to.
Oh, and nephrotic syndrome is caused by numerous conditions that cause chronic renal failure. It sounds like her son has some sort of autoimmune condition. I thought I saw IgA nephropathy as I was quickly scanning this thread...in any case, these 'glandulars' you speak of will certainly do nothing to improve her son's condition. He needs a transplant.
I hope a match is found.

 

[Madeline Rhodes]

Thanx, I will

Whadda you know, kidney glandulars are regularly prescribed by naturopathic doctors for nephrotic syndrome:

http://organicpharmacy.org/products/Renaplex.-.Kidney.Glandular

You see, I was right all along. An apology would be nice

I would but I can't... You read but didn't process what you quoted:

The kidneys perform basically two major functions; they excrete body wastes and control the concentrations of the constituents of body fluids. In many different illnesses, these functions are impeded, resulting in disease of the kidney itself. These include (1) acute renal shutdown (2) chronic renal insufficiency, (3) nephrotic syndrome and (4) specific tubular abnormalities. The importance of supporting the kidneys in any disease state cannot be overemphasized since progressive decrease in the numbers of functioning nephrons can lead to electrolyte overload, hypertension, anemia, osteomalacia, and finally death

It's not the same condition. Sorry dear.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001520/ - Nephrotic syndrome -Nephrosis

Nephrotic syndrome is caused by various disorders that damage the kidneys, particularly the basement membrane of the glomerulus. This immediately causes abnormal excretion of protein in the urine.

vs.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001500/ - IgA nephropathy - Nephropathy - IgA; Berger's disease

Nephropathy refers to damage, disease , or other abnormalities of the kidney. IgA nephropathy is a kidney disorder in which antibodies to a protein called IgA build up in kidney tissue.

I believe your heart may have been in the right place, or you wanted me to admit wrong doing. Either way I can't.

You have the correct organ though!

 

[Mervyn]

It is stupid to trust doctor's implicity without asking several probling questions , this has nothing to do with a Doctor's inentions , but many things in medical science are based on a Doctor's opinions, so you need to know everything you can.

So implicity trusting a traditional doctor is not advised, implicity trusting "natural" cures is just as foolhardy, a drug is a drug is a drug, doesn't matter if it's articially created or extracted from some orchid that grows in the rain forest.

So stop arguing WHAT she should do, that is just plain rude, and just give her advice of how to find out for herself.