Chronic Fatigue

[herames]

hows my fellow Terb brothers!?.....with the wealth of information on here thought i ask if anyone had good sources for Chronic Fatigue treatment!? Anyone know of good clinic or doctor. A knowledgeable Doctor is priceless. Heard one too many conspiracy theory and wive tales.
Many thanks for your time.

 

[Carrie Moon]

no.. but this site has some great treatment centers in the US (detroit is the closest to T.O.)
http://www.fibroandfatigue.com/

I also enjoy this site for good info. http://www.prohealth.com

this site has a small list of Ontario docs.. but I have no personal experience with any of them. Most are off the normal medical practice route and you do need to be prepared to spend money that OHIP doesn't cover.. http://www.co-cure.org/CAN_ON.htm

also this site is a jumping off point for canada. http://www.nightingale.ca/

 

[herames]

thanks for the contribution Ms Carrie..i appreciate it. i went to get tests..but i hate the test sheet that has test for other things on a DNA level..freaky shit
http://www.dna-human.com/documents/HGC-SF112904.pdf

 

[herames]

i actually did some Library research as there is a search of confusion on the internet.
i think we are lucky here in the Toronto area as this doctor Alson C. Best has writen a book on Chronic Fatigue Syndrome, Fibromyalgia
and Multiple Chemical Sensitivities. the book is called "Hope And Help for Chronic Fatigue Syndrome And Fibromyalgia"
She has some 18+ years of knowledge. i am going to check her out at her office. Seems like i can get ohip covers my vists to see her if my family doctor approves.
http://www.drbested.ca/index.php

 

[Meesh]

I'd help, but I'm way too tired...

 

[squash500]

i actually did some Library research as there is a search of confusion on the internet.
i think we are lucky here in the Toronto area as this doctor Alson C. Best has writen a book on Chronic Fatigue Syndrome, Fibromyalgia
and Multiple Chemical Sensitivities. the book is called "Hope And Help for Chronic Fatigue Syndrome And Fibromyalgia"
She has some 18+ years of knowledge. i am going to check her out at her office. Seems like i can get ohip covers my vists to see her if my family doctor approves.
http://www.drbested.ca/index.php

IMHO CFS and Fibromyalgia are controversial diagnoses as most of the medical community thinks CFS and Fibromyalgia is a bunch of bullsh**.

Disclosure--Obviously I'm not a Doctor but have read a few articles on this topic. There doesn't seem to be too many docs who are either CFS or fibromyalgia friendly!

 

[Gotchaman]

IMHO CFS and Fibromyalgia are controversial diagnoses as most of the medical community thinks CFS and Fibromyalgia is a bunch of bullsh**.

Disclosure--Obviously I'm not a Doctor but have read a few articles on this topic. There doesn't seem to be too many docs who are either CFS or fibromyalgia friendly!

Yes fibromyalgia may be pure fiction according to the medical community. Funny though how US drug companies have developed medication for this non existent medical condition. What a surprise

 

[herames]

IMHO CFS and Fibromyalgia are controversial diagnoses as most of the medical community thinks CFS and Fibromyalgia is a bunch of bullsh**.

Disclosure--Obviously I'm not a Doctor but have read a few articles on this topic. There doesn't seem to be too many docs who are either CFS or fibromyalgia friendly!

you are correct sir...a good part of CFS is depression. Fibro is depression combined with great degree of rheumatic pain.

 

[bullwinkle]

Just saw a lecture from a published medical researcher based in England saying that a lot of maladies like CFS are caused by lack of Water ..

Apparently just because you dont feel thirsty does not mean your body doesnt need more water ..

He recommends ~50 oz of water per 100 lbs of body weight , daily .

That translates into about 10 glasses of water daily for a person weighing 150 lbs ..

HTH

 

[chiller_boy]

I believe CFS is a disease whose diagnosis is achieved by elimination of everything else. Thus, when they cant figure out whats wrong with you, you have CFS.

 

[herames]

I believe CFS is a disease whose diagnosis is achieved by elimination of everything else. Thus, when they cant figure out whats wrong with you, you have CFS.

i heard some saying Gulf War syndrome is correlated . but i had definitive PCR /dna tests done. the book Dr. Bested does have valid points. There isn't direct meds for CFS.i did do the complimentary medicine which had me taking some freaky antibiotics..my body went F#$king nuts with those i had to stop. after 5 months i righted my health. but in the last 3 weeks i had a relapse..came on with a flu and haven't been able to shake it. I have more of a "Mental fog" than body fatigue. can't walk and chew gum of sorts.. but yesterday i had somewhat of an improvement.

 

[lawyerman]

IMHO, I would see an Ayurvedic doctor.

www.ayurvedtoronto.com

 

[Captain Fantastic]

IMHO CFS and Fibromyalgia are controversial diagnoses as most of the medical community thinks CFS and Fibromyalgia is a bunch of bullsh**.

Disclosure--Obviously I'm not a Doctor but have read a few articles on this topic. There doesn't seem to be too many docs who are either CFS or fibromyalgia friendly!

Not directed at squash, but to anyone who subscribes to this train of thought or the doctors that are too lazy to help.



God, how fucked are some people? That's like saying Asperger syndrome is a bunch of B.S.

Obviously all the naysayers have never dealt with CFS/FM or had a family member suffer from it. (Full disclosure: I have two family members that suffer from some mystery ailment that can be described as CFS or FM, etc.) The feeling of helplessness after going for literally dozens, if not a couple of hundred tests and not getting any answers is overwhelming. Constantly feeling like shit - dead tired, achy, numerous and changing ailments - but not having doctors believe you. Trying to lead a normal life or an active life but simply being unable to do so. Constantly questioning yourself because of the doctors' inability to diagnose anything. Not fun in the least.

There are few Gregory Houses' out there who will actually take the time and effort to make a complete diagnosis and systematically go through the symptoms until they find the cause or ailment.

Consider yourselves very lucky not to suffer or watch a loved one struggle with this life-altering illness. And perhaps try and show a little empathy.

 

[herames]

Not directed at squash, but to anyone who subscribes to this train of thought or the doctors that are too lazy to help.



God, how fucked are some people? That's like saying Asperger syndrome is a bunch of B.S.

Obviously all the naysayers have never dealt with CFS/FM or had a family member suffer from it. (Full disclosure: I have two family members that suffer from some mystery ailment that can be described as CFS or FM, etc.) The feeling of helplessness after going for literally dozens, if not a couple of hundred tests and not getting any answers is overwhelming. Constantly feeling like shit - dead tired, achy, numerous and changing ailments - but not having doctors believe you. Trying to lead a normal life or an active life but simply being unable to do so. Constantly questioning yourself because of the doctors' inability to diagnose anything. Not fun in the least.

There are few Gregory Houses' out there who will actually take the time and effort to make a complete diagnosis and systematically go through the symptoms until they find the cause or ailment.

Consider yourselves very lucky not to suffer or watch a loved one struggle with this life-altering illness. And perhaps try and show a little empathy.

well said..i find the Family docs have enough on their plates... and i wouldn't want to come across as hypochondriac. its a F#$Ked up condition

 

[phail]

the problem is the medical community knows very little to nothing about it, the syndrome is in its infancy in terms of etiology, diagnosis, treatment, etc...
and therefore by definition have inadequate ways of dealing with the physical, emotional, and psychologic sequelae of the illness.
the unfortunate patients who have it now have to suffer through inadequate therapeutic options until the medical community figures it out.
not unlike diabetes in 1920.
till then we need compassionate physicians to listen to these patients very closely

 

[squash500]

Not directed at squash, but to anyone who subscribes to this train of thought or the doctors that are too lazy to help.



God, how fucked are some people? That's like saying Asperger syndrome is a bunch of B.S.

Obviously all the naysayers have never dealt with CFS/FM or had a family member suffer from it. (Full disclosure: I have two family members that suffer from some mystery ailment that can be described as CFS or FM, etc.) The feeling of helplessness after going for literally dozens, if not a couple of hundred tests and not getting any answers is overwhelming. Constantly feeling like shit - dead tired, achy, numerous and changing ailments - but not having doctors believe you. Trying to lead a normal life or an active life but simply being unable to do so. Constantly questioning yourself because of the doctors' inability to diagnose anything. Not fun in the least.

There are few Gregory Houses' out there who will actually take the time and effort to make a complete diagnosis and systematically go through the symptoms until they find the cause or ailment.

Consider yourselves very lucky not to suffer or watch a loved one struggle with this life-altering illness. And perhaps try and show a little empathy.

Captain a lot of Psychologists, Psychiatrists and Family Doctors do think that AS is a bunch of BS. They all know that AS is in the DSM4 but that doesn't mean that all clinicians will diagnose their patients as having AS even if all the evidence leans towards the AS diagnosis.

In other words diagnosing someone with AS is an inexact science. Personally I've been diagnosed as having NLD---non verbal learning disability, AS and specific learning disability. I've had three different diagnoses made by three different clinicians.

Captain the mystery ailment that your family members suffer from might not necessarily be CFS/FM. It could be something else completely? With all sincerity I'm sorry for your two family members frustration about not getting any set answers. I know how frustrating that can be speaking from personal experience.

I was diagnosed with my learning disability very late in life. For the longest time a lot of my family members thought that I was just lazy and an underachiever. AS only became part of the DSM4 in 1994. It was only when I went for psychological testing in my early thirties that my learning disability was officially diagnosed. As I've mentioned before on terb I am presently 46 years old.

I envy the kids today who are diagnosed with AS when they are 5 or 6 years old. I was born 20 years too early to get the needed help that these kids are now getting from an early age.

Getting back to CFS/FM. According to my family doc less than 50% of the medical community believe that CFS/FM even exists as a credible diagnosis. Maybe that's why a lot of Doctors won't give your two family members the answers they are looking for?

 

[Questor]

hows my fellow Terb brothers!?.....with the wealth of information on here thought i ask if anyone had good sources for Chronic Fatigue treatment!? Anyone know of good clinic or doctor. A knowledgeable Doctor is priceless. Heard one too many conspiracy theory and wive tales.
Many thanks for your time.

I haven't much to offer you in the way of suggestions. You already have several good ones in this thread. Good luck finding something that works for you.

 

[Captain Fantastic]

...Getting back to CFS/FM. According to my family doc less than 50% of the medical community believe that CFS/FM even exists as a credible diagnosis. Maybe that's why a lot of Doctors won't give your two family members the answers they are looking for?

[Rant] But that's the thing, my family members (and most others) are looking for answers, not affirmation of one particular illness. They just want to know what is wrong and find some physical (and mental/emotional) relief. However, if the doctors can't come up with anything over 15+ years and yet still don't want to believe in the possibility of ME/FM/CFS, when there are common symptoms among sufferers, then that to me, from a scientific perspective, is condescending, negligent and closed-minded.

My concern is physicians who out-and-out don't believe in ME/FM/CFS and also doubt the symptoms of the patients who come to them. Do they think that my relatives want to constantly feel physically, mentally and emotionally drained and ill? Do they really want to go to multiple doctors, subjecting themselves to myriad tests? Are the sufferers all part of a mass hysteria of slackers and hypochondriacs? A few, perhaps, but thousands, if not millions of people worldwide? Give your collective head a shake, oh wise medical community... [/Rant]

(And I made the point about Asperger's precisely for that very reason - I know that the medical community doesn't have consensus around AS and I know how frustrating that is for sufferers and their families. That was my way of illustrating empathy and understanding.)